Cancer Moonshot Panel report emphasizes importance of PROs
In January 2016, President Obama announced the White House Cancer Moonshot Task Force and directed the task force to assemble a working group of scientific experts from areas including biology, immunology, genomics, diagnostics, bioinformatics, and cancer prevention and treatment. The panel was co-chaired by Tyler Jacks, Ph.D. and Elizabeth Jaffee, M.D.
After several months and tens of meetings the Blue Ribbon Panel published their inaugural report, along with a series of videos explaining their key recommendations – take a look.
The recommendations include 1) accelerating the development of guidelines for routine monitoring and management of patient-reported symptoms in all care settings 2) that systematically gathered patient-reported outcomes data and evidence-based symptom management are needed to improve patients’ quality of life.
They also comment that with the addition of Cancer Moonshot funding, implementation science research on how to deploy PRO measurement technologies could be drastically accelerated, and this funding would also foster needed research on ways to integrate these systems into overall care delivery, empowering the cancer care team to act upon the PRO data and intensify symptom care.
In their closing statement the report notes that if their recommendations are acted upon, patients will be able to contribute their data, learn about treatments and find relevant information; doctors will have access to information that better predicts treatment outcomes and helps them control symptoms and side effects.
While these are just some of the highlights from the report, we applaud the panel for its focus on patient-reported outcomes and the need for their integration in to routine care. These are exactly the challenges we are tackling head on at Outcomes.com, helping the clients we work with bring new models of care to their practice.